I am not dying.

Before I begin, I would love to say thank you God for bringing me to America. You saved my life. As many of you already know, I have been dealing with a rare medical condition called Polycythemia Vera which is a form of blood cancer in the bone. I have a jak2 mutation in my system that is causing my body to produce too much red blood. Twice, I have escaped a serious stroke. A couple months ago, during a soccer match, I had a minor stroke and that was the wake up call that I needed. I went to visit the doctor, thanks to Jenny, a nurse and the mother to one of the kids on my soccer team, the doctor looked at me with disbelief. He had never seen anyone with a high Htc (Hematocrit) during his 30 years of treating cancer patients who is alive without a major stroke. My Htc is 77.9% and regular human beings are supposed to be between 40-54%, and I was 23.9% over. If I had not agreed to get medical help when I did on September 18th, I would have been laying in the hospital bed dealing with a stroke or being put 10ft below ground.

My Plt (Platelets) was 913,000 K/ul and regular human beings are supposed to be between 150-450 K/ul, and if I got to 1,000,000 K/ul with my current jak2 mutation, that will send me into the leukemia zone. There is no cure for my condition, but it is something I could live with as long as I maintained my Htc between 40-54%. I have been going in for a blood removal of 500ml twice a week, and it is something I might have to do for the rest of my life till they come out with a drug that could help control that number without all the blood work. I went from a boiling point of having stroke in a matters of minute to what the doctor called the hot zone to having stroke in a matter of weeks if I am not getting treatment. I am making progress. My red eyes are now white eyes, and I am so excited about that because I am tired of people asking me for weed or looking at me weird as if I was high on weed! I mean, my eyes were super hot red so I don’t blame them. On Tuesday, I will be going for a four hour Biopsy procedure to make sure there is no other mutation hiding in my body. If there is another mutation, then I am heading to the leukemia zone. Please keep me in your prayers, and I will update you about the result next Sunday. I will start from the beginning, when it all began and how I found out about my blood cancer. Every Sunday, I will be posting a blog with the hope of inspiring others with my story. Truth be told, it hasn’t hit me yet. The reality of my condition that I could have a stroke at anytime. The baby asprin I am taking, as a blood thiner, is giving me a stomach ulcer. A very painful one, but I have no choice. Without the baby asprin the chance of having a stroke goes from the hot zone back to the boiling point. When I think of my life and everything, I must say, there is a God watching over me! Till next Sunday my friends! IMG_1691     My new life, bandage on the wound till a cure is found!

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11 thoughts on “I am not dying.

  1. Wow, you are incredibly strong and shown your resiliency! Thinking of you sending healing thoughts and prayers!

    Liked by 1 person

    1. Thanks very much! I try my best.

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    1. David, thanks very much for sharing the story. You are awesome. My goal is to use this to inspire people because now I know why I was always injured and that cut my pro dream short!

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  2. You are strong, brave, and determined my friend! We are so glad you are taking care of yourself :). You are one of the best soccer coaches we have ever had ❤️. We miss you. Many prayers coming your way!

    Liked by 1 person

    1. Thanks very much! I might be coming back to help with the 07 as assistance to Dan. Right now I need some smiling and joyful energy, and being around the kids gives me that so I will be coming to assist Dan to be around the kids! Thanks for the prayers!

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  3. My thoughts and prayers to you MD. God be with you my brother.

    Liked by 1 person

  4. I think you just need more time on Bainbridge and some home cooking! No pork or mushrooms! Praying for you my friend.

    Liked by 1 person

    1. I think that is the solution! Hope my friend is doing well and yes no pork hahhaha

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